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These are some of the problems you might face when undergoing dialysis.
Some of your physical challenges might include:
- Lack of energy and need time to rest
- Problems with large fluid intake and frequent urination
- Indigestion and hemorrhoids
- Joint inflammation
- The need to gain access to your blood during dialysis.
Some of your psychological challenges may include:
- Feelings of surprise and rejection
- Feel healthy and don't want to be a patient, or
- Always feel sick and feel they have no quality of life
- Afraid and worry about safety
- Feeling nervous and anxious because they don't understand what's happening or don't understand laboratory tests and drugs
- Concerns related to the start of dialysis
- Feel angry at the doctor because it is not diagnosed early
- Wondering whether dialysis can be avoided by taking pills, changing diets or keeping blood pressure under control
- Worrying about pain, being in the position of compassion for others, becomes a "burden" and feels like it is useless
- Fearing whether doing dialysis is a mistake is responsibility.
Some of the social challenges you face might include:
- Worry that you will not have time to start dialysis and worry if it will affect how you care for your children / grandchildren
- Transportation to visit a doctor or dialysis center
- Limited or no insurance
- Other financial problems
- Problems related to living alone or with other people
- Get to know and rely on new health care providers
- Feel unsure of a hospital or specialist who will be involved in your care
- Care providers are located far away.
Some spiritual / existential challenges might include:
- Thinking will die
- Feeling your life and dreams have been destroyed, that your life has fallen
It is important to learn how to deal with this problem. For example, following a healthy exercise and diet program, and discussing the problem with doctors and other health care providers, including mental health specialists, social workers and others, is a long-term way of dealing with physical and emotional challenges.
Getting used to dialysis is often difficult and requires patience and physical and emotional strength. However, with a positive and realistic attitude, understanding that dialysis might be able to save your life and help from others in the same situation as you, dialysis will be a "new activity" in your life. One thing is certain:
Starting dialysis will change the lives of you and your family, friends and loved ones.
Try to visit other people who also do dialysis to see how they deal with it. Talking with members of your health care team, especially your social workers, about the problems you are experiencing is also a good thing to do. Some dialysis clinics or communities have support groups that you can attend.
